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Muscular Dystrophy UK

Over 70,000 young children and adults live with a muscle-wasting condition in the UK today. There is no cure, it limits and, in many cases, shortens lives.

Muscular Dystrophy UK funds pioneering research into treatments and cures to improve lives today and transform those for future generations.

We're here with information, advice and support to help people with or affected by the condition to live well with muscle-wasting conditions. And we're driving change to see better care so that people can stay active, independent and connected.

The purpose of OPEN-TACT
 
  • OPEN-TACT is an online e-learning resource developed with specialist neuromuscular physiotherapists for other specialist neuromuscular and community-based physiotherapists wanting to learn more about how to assess and manage neuromuscular disorders. 
  • In the first year it will develop modules related to Duchenne muscular dystrophy (DMD) and Pompe disease.
  • In addition, a unique virtual clinic will allow physiotherapists to learn how to accurately carry out North Star Ambulatory Assessments (NSAA) for boys with Duchenne muscular dystrophy including timed tests, reliably score an NSAA and learn more about clinical decision-making based on NSAA scores and assessment.
Why it is important for physiotherapists to know more?
 
  • Neuromuscular conditions are rare and physiotherapists working in the community and secondary care do not often come across these conditions. It is essential to ensure best care that everyone has access to good quality information on assessment and management of these many and varied conditions.
  • Upskilling therapists will help promote appropriate and similar advice to come from all physiotherapists involved in that care and give confidence to community staff that their advice and management is appropriate.
 
What will a physiotherapist gain from OPEN-TACT?
 
  • Specialist knowledge about neuromuscular conditions – initially Duchenne muscular dystrophy and Pompe disease.
  • This knowledge will help them more confidently deliver the right care for their neuromuscular patients.
  • Signposts to other useful resources for physiotherapists wanting to gain skills in assessment and management of this area.